CMV is one of the leading infectious causes of disability in newborns worldwide. Most parents have never heard of it. We're changing that.
"We believe no family should hear the words 'congenital CMV' for the first time in a crisis."
— The Hope Initiative for CMV
Founded
2025Our Story
At 34 weeks, we were suddenly faced with a diagnosis we had never heard of - congenital cytomegalovirus (cCMV).
Charlie’s life is the reason we’re here. To raise awareness, empower parents and help protect babies.
Read the full storybabies born with cCMV in Australia
NSW Health / Australian studies
babies born with cCMV every year in Australia
Miracle Babies / Australian studies
of pregnant women in Australia are aware of CMV
ANZJOG Study
more common than toxoplasmosis and listeria combined
CCCH, 2025
Understanding CMV
Cytomegalovirus (CMV) is a common virus that usually causes mild illness or no symptoms in healthy adults. But when passed from mother to baby during pregnancy, the consequences can be life-changing.
Congenital CMV (cCMV) is the most common viral infection passed from mother to baby during pregnancy - yet awareness remains critically low.
Explore resourcescCMV is the leading non-genetic cause of hearing loss in children - making awareness and early screening critical.
Around 85–90% of babies with cCMV appear healthy at birth. Symptoms may emerge months or years later, making awareness and screening critical.
Handwashing after nappy changes, avoiding sharing food or drinks, and not kissing young children on the mouth are all effective measures.
If you are pregnant or planning a pregnancy, ask your healthcare provider about CMV and what you can do to protect your baby.
Our Mission
The Hope Initiative for CMV exists to increase public and professional awareness of CMV — and to ensure no family hears the words "congenital CMV" for the first time in a crisis.
Ensure pregnant families and healthcare professionals know about CMV, its risks, and how to reduce transmission.
Push for consistent, equitable newborn screening and surveillance programs across Australia.
Champion research into better prevention, treatment and outcomes for families affected by cCMV.
Share what you've learned. Support our mission. Talk to your midwife.